Ruils was formed by a group of Disabled people who wanted to have more choice and control over their lives.
In 1999, a group of local Disabled people came together to discuss their shared experiences around issues with their care. They were tired of being put to bed at 5pm because that was when the care agency staff could come for a visit. They had limited choice over where they went and when and very little choice over the individuals who provided their care. These were just a few of the many challenges they were facing.
What started as a conversation around a table turned into Ruils Independent Living, an organisation which campaigned for equity, Disabled rights and acted as the voice of Direct Payment users. Our founding members Richard Kember, Alan Pinn, Margaret Nash, Jamal Mohamad and Jean Hamilton believed that Disabled people should have choice and control over their care and lives. Their vision was for a world without disabling barriers; a world where all people could be independent and thrive.
In 2003, the founders made it their mission to realise this vision and registered Ruils as a user-led charity.
Over the last 20 years Ruils has grown into an innovative organisation that provides holistic, person-centred support. We raise awareness of the barriers Disabled people experience, deliver services to break down barriers and amplify the voices of Disabled people.
We have stayed true to the original mission and vision our founders set and continue to work to remove the barriers that prevent Disabled people from living independent lives.
Ruils timeline
We celebrated our 20th Anniversary in 2023 and put together this timeline to highlight key milestones in the Ruils story.
Ruils has grown from 1 part-time employee and 1 service to a staff team of 57 members running 15 services, 11 activities and 2 user led forums across four boroughs.
We may have grown, but our vision remains the same – a society where all individuals are independent, valued, effective, equal and fully engaged members of society. Thank you for being part of the Ruils story!
Our founders & past leaders
Richard Kember
Founder, Vice Chair and Chair
A teacher, a campaigner, a friend Richard was one of our founders and chair for 8 years. Ruils epitomised everything Richard stood for: Equality, Independence, Choice, Access for all. Richard was an active chair and really knew the Ruils projects and people inside out. He was the writer/editor of our newsletter, he loved to design fliers and leaflets, he was always researching and writing up new project ideas, he was even a model for our photo library. He could and would turn his hand to anything. He even became chief cheerleader supporting staff and volunteers who completed the 5km Rough Runner to raise money for Ruils in 2015. He had an incredible energy and determination. This really came to play in his Campaign Work. Whether it was waving placards demanding changes to services, sitting on advisory boards/committees/action groups, chairing Hustings, Richard loved to campaign. More than anything, he wanted society to change. He wanted society to stop disabling people. But equally he was frustrated by the way that some disabled people accepted the status quo. He wanted more people to get involved and to take a stand. But what truly made him different is that he saw the big picture. He understood the constraints that the local authority or government work under. He knew that not everything was possible. But he challenged people to think differently, to be creative. He was kind, thoughtful, funny, intelligent and his steadfast leadership has driven Ruils forward.
Elizabeth Chambers
Trustee
Elizabeth joined Ruils in March 2005, first as a volunteer and minutes secretary, later becoming a trustee. She served on several sub-committees making a huge contribution especially to personnel, quality management and governance. She is a strong supporter of direct payments as a means to independent living for disabled people having seen the impact it has had on her own family members. Elizabeth retired in January 2021, but remains a supporter and ambassador of Ruils.
Bob Burgis
Trustee
Bob was involved with Ruils from 2006 until 2020. He was an active board member serving on both the quality and personnel sub-committees for many years. He made a huge contribution to Ruils’ campaign work and help to set up and run Your Say our community involvement group. With Paul Leonard Bob set up the Richmond Transport and Mobility Forum. This forum has grown from strength to strength and gives individuals the opportunity to bring their issues to the bus and rail companies and Richmond Council directly. Bob was a huge advocate for independent living. He retired in January 2020 and sadly passed in December 2023.
Jamal Mohamad
Trustee and founding member
Jamal, a political refugee from Iraq, was forced to abandon his career of 24 years as a Senior Chemist (B.Sc), following a period of imprisonment and torture by the previous regime. His escape also ended his charitable work in his home city where he had served as a Trustee of an organisation that helped people on low-income to secure land that provided a measure of subsistence. Jamal was one of the early adopters of Direct Payments in Richmond and was involved with Ruils from the start. He played an active role in the office helping with book-keeping and was an active member of the finance sub-committee and Your Say. Jamal was always positive and encouraging. He retired in 2019.
Jean Hamilton
Trustee and founding member
One of our founding members and a long term advocate for Direct Payments, Jean was born in Crail, Fife. She spent over 30 years working for disability organisations and the CAB. Jean has always managed a team of Personal Assistants and is fiercely independent. Her attention to detail, passion and commitment to making services work for disabled people has been a real asset to Ruils. Jean retired from Ruils in 2017, but remained connected to us and our work. She sadly passed away in 2020.
Margaret Nash
Founding member
Margaret was an active member of Ruils and very much enjoyed visiting various groups representing the benefits of independent living and Direct Payments. She was very much the practical one, arranging catering and helping with the organising of our AGMs. Margaret’s real joy was entertaining, whether it be in her own home, organising events for the Thames Valley group of the Disabled Drivers Association and other local organisations. Tony (her husband) was always there backing her up (most of the time anyway) and doing the fetching and carrying. No one excelled like Margaret at being the convivial host – making sure that all were welcome and no one was left out. Her zest for life rubbed off onto others and certainly helped her get over the times she had to spend in hospital. She was a great listener (and talker) but was the first to help if anyone was in trouble. There will never be anyone to match her, she will always be remembered.
Alan Pinn
Founding member and Chair
Alan was an ‘ever-present’. He grew up in the borough and was a life-long supporter of disabled people’s rights. He was a founder member of both Ruils and Richmond Aid and always put himself forward to serve on committees in order to articulate the views and expectations of people who, like himself, were disadvantaged by society’s prejudices and negative attitudes. Alan was one of the first people to get Direct Payments (DP) and, with a few others, worked from home to set up Ruils as the supporter, champion and representative of DP users. He managed with admirable efficiency a team of personal assistants that provided round-the-clock support and with his guidance and control he carved out a measure of personal independence that demonstrated the real benefits of DP. Under his chairmanship, Alan saw Ruils develop into a registered charity, capable of delivering services and giving other disabled people the opportunity to do voluntary work and gain work experience. The borough, and Ruils, lost someone who helped push the disabled movement forward by getting personally involved and demonstrating a dogged determination to promote independent living.
Alan Benson MBE
Trustee and Chair of Richmond Transport & Mobility Forum
Alan Benson MBE, our Ambassador, previous Trustee and Chair of Your Say and the Richmond Transport and Mobility Forum, was a strong supporter for Ruils and our campaigns work. From taking over from our previous Chair, Richard, doing campaigning work, to driving Your Say and the Transport and Mobility Forum, he was committed to our vision of a world without barriers. He was also incredibly important to the accessible transport movement and local accessibility work, receiving the Freedom of the Borough in Richmond. His passion and dedication has made the Borough of Richmond and London more accessible and his legacy will have an impact on future accessibility projects for years to come. We will always remember Alan for his witty sense of humour and keen ability to get people to see things from a different perspective. He leaves behind a legacy of people and groups carrying on his work to make the world more accessible for all.